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Children’s Weekends

Since our inception in 2009…. we have sought and planned to gather as many families together once a year for a weekend whereby both children can meet others with the same, or similar conditions – and parents can meet and swap stories and concerns..

These get-together are invaluable to all who attend, and have helped to foster some very strong support and information networks.

Further details below…

2014
Minutes from 2014 meeting in Staffordshire – here>

2013
Minutes from 2013 meeting in Staffordshire – here>

2012
Minutes from 2012 Gathering, at Butlins Minehead – here>

2011
Report from 2011 Meeting in Staffordshire – here>