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Events, General Posts »

[1 Jul 2013 | Leave a Comment | ]

27-29 June 2014 Best Western Moat House Hotel,
This weekend is our great gathering where we can meet, chat, learn and …

Events, General Posts »

[1 Jul 2013 | One Comment | ]

Well we’re all home… back into the tasks, traumas, oh and delights, of everyday life….
But what a great weekend we …

Events »

[10 May 2013 | Leave a Comment | ]
2013 Children’s Weekend

A bit last minute, but the Children’s Weekend is planned for June 2013, At the Best Western Hotel, Stoke on …

Events, Research »

[1 Feb 2013 | Leave a Comment | ]

Run by the research team at the John Radcliffe Hospital and at GOSH, a day of workshops and informations for …

Events »

[14 May 2012 | Leave a Comment | ]

The first year we held a children’s weekend eight families dealing with myasthenia met up to get to know each …