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MyasthenicKids is actively fundraising to build the family support network and to hold next year’s Children’s Weekend. We fundraise as the MGA National Children’s Branch on behalf of the children and for research into all types of myasthenia.

2013 – Tom’s Epic Cycle ride in June

‘I’m cycling from Paris to Florence for Myasthenia Gravis Association because I want to raise money for Myasthenic Kids’

Further details, and Just Giving page here…


Finn’s mum makes beautiful handmade cards to order

£2 each plus postage at cost. Order from lucie.newcombe@sky.com


Ellie’s parents ran the great north run:

Click on the picture below to read the full story in JournalLive.co.uk
Parents running Great North Run for daughters rare condition


We’re running for our little survivor
Journal Live – In her short life, Ellie, who has Congenital Myasthenia Syndrome (CMS), has already suffered many near-fatal cardiac arrests and her family must always be



Isabella’s parents are running and cycling a series of challenges:


We welcome donations through our branch Just Giving page: